Archive for May 2009
BIG MISTAKE
Posted May 20, 2009
on:
Here is a post I made on the FF forums. I don’t have the energy to re type it .
I went to see the guy for my Asherman’s yesterday. Here is the update I wrote in the TTC 3+ years IVF buddy group they given replies in our group: we are back. I’m exhausted. We sat down in a room and 2 ladies came in (Dr. Issacson’s assitants) they asked us a bunch of questions about our history (mostly our IVF history). After that the doctor came in and said that since I never had any D&C’s or any surgeries that could have caused Asherman’s and that I was still having my period (woman with Severe Asherman’s don’t typically have a period) that he thought I would have a normal uterus. He got out a drawing of a uterus and showed me what he thought the doctor had done during my last hysteroscopy. He said he thought she had gone into the uterine wall and that the picture was of my muscle tissue. He wanted to do a hysteroscopy to see whether this was true or not. Only problem was I wouldn’t be under anesthesia. I was nervous but I agreed. First he gave me a vag ultrasound and showed me that I had a triple stripe lining. The hysteroscopy was VERY difficult. After 2 attempts he had his assistants (there were 3 woman assisting him) go get the ultrasound machine to help him guide his way. There was actually a “fake” entrance to my uterus. Leading us to believe what he said was true. After a VERY long time and lots of pain he finally got into my uterus. Perfectly healthy. Picture perfect. No scar tissue! He was right. The doctor that had done my last hysteroscoopy had gone into my uterine wall and cut away at my muscle tissue. She thought she was cutting scar tissue away from my left tube! You see my cervix goes straight then gets to a point where it bends (like the letter C ) the last doctor should have known this since I did 4 IUI’s with them and they were the one’s that discovered this. She used a hard instrument that didn’t bend. Now I don’t know if she’s the one that caused the extra “fake entrance” or hole in my cervix or not. I’m very upset but very relieved at the same time. It’s lots of mixed emotions. Here is a picture of where the doctor that did the last hysteroscopy (a local doctor did it for SIRM so it WASN’T SIRM). She went part way down my cerivx. Then when my cervix bends she made a hole instead of going with the bend. Anyhow, she went behind the uterus into the uterine wall. So here she thought I had Asherman’s but it my muscle tissue behind my uterus. The bottom left is where she clipped away at what she thought was my left tube. nope…muscle tissue.
“What are your plans now?”
Well thanks to this stupid doctor I lost my last chance at IVF. I lose my infertility coverage at the end of May. My hubby and I are exhausted mentally and physically from all these doctors and medical treatments. We have been on a break since last summer and this experience has been a huge reminder to me of the pain of the procedures. If I did do another IVF it wouldn’t be for a while….like may be a year down the road…IF that. But the fact is I’m losing my insurance and Jon’s insurance probably doesn’t cover it. I emailed the RE from SIRM to let him know what happened and this is what he said:
All I can say is unbelievable, and I am sorry to hear about your lost opportunity for IVF.
I think the physician that did your hysteroscopy should offer to pay for your IVF if you did indeed ever want to do it.
This only reinforces my feelings that I should do EVERYTHING for my patients.
I called the office and talked to the the woman that did all my IUI’s. I had a better relationship with her then the doctor that did my hysteroscopy (we’ll call her Dr. B) the woman I spoke to “J” didn’t respond in the way I expected. (although in hendsight did I expect them to basically admit they screwed up BIG TIME?). When I explained what the doctor had found she said “well that’s not what I’m looking at” meaning that it couldn’t possibly be muscle tissue. I said “well I doubt my scare tissue cleared up in a month” And we continued to talk. At the end she said “I’ll tell Dr. B what Dr. Issaccson thought”.
I also got to thinking today. When I went in for my saline ultrasound ” J ” was the one that attemped it. It took her 45 minutes. In the end she wasn’t sure if she got into my uterus but I saw the catheter on the ultrasound so I know she got in there eventually. There was lots of poking, prodding and tons of blood by the time I was done. Makes me wonder if she contributed to the extra hole I now have in my cervix area. Who knows how it got there but someone did it. I mean she poked me so much that day that she put me on antibiotics so I wouldn’t get an infection. So I’m almost wondering if she’s the one that started to make a hole behind my uterus to the muscle tissue and that “Dr. B” continued down that path when she did the hysteroscopy. Who knows what happened.
Please keep in mind that hubby and I don’t even know if we want to do another IVF. As far as we are concerned we are done with doctors completely. Heck if I ever do get pregnant I’m going to a birthing center like my SIL is. I know there are good doctors out there. But between this doctor and the other doctors not listening to me when I ask for testing….I’m so done. but if I had the option to do IVF would I? I don’t know. Right now I just want to live my life for a while. But in the mean time to I persue this and do anything about the fact that they messed up?
Conference
Posted May 20, 2009
on:We had ward confrence this past weekend. It was wonderful. Its where we listen to people give talks. Adult session on Saturday was by far the best. My favorite talk was given by one of our RS councelors (the one that is pregnant after 7 years of infertility). She gave a wonderful talk on Grattitude. I couldn’t even give justice to her talk though so I won’t even try. She is an amazing speaker though. There were also people that sang. Here is one of the songs. It was sang by a gentleman in another ward. He is the stake choiar director. He has an amazing voice (this recording is by a woman.) but the song really spoke to me that evening. There is a version with a male singer, which I really like but I couldn’t find a cover/picture for the video. unfortunately blogger doesn’t let you just upload MP3’s so I had to make it into a movie file.
Mother’s Day
Posted May 20, 2009
on:Mother’s day went considerably well this year considering all the recent events. Oh…like finding out that we had Asherman’s and that we would probably never have children. (for those that are religous this next part will be easier for them to understand) I was struggling with my faith. Mostly because I had blessings in which I had been told I would be a Mother and that I would be pregnant and have healthy babies and it would happen sooner then I thought. (actually I wrote a blog entry about it I believe). I didn’t understand, first of all, why God would tell me something and let so much time pass (almost a year now) clearly that’s not “sooner then you think” in my eyes. Then I got to thinking.
IVF #7 canceled
Posted May 18, 2009
on:
tissue submitted: uterine contents clinical diagnosis and history: ADHESIONS
Gross Description: received a single container labeled with the patient’s name and said to represent uterine contents. The specimen consists of scanty, pink-tan hemorragic and mucoid tissue fragments aggregating to 1.5cm submitted entirely in one cassetic. (not sure what that last word is-their print out is hard to read)
DIAGNOSIS: UTERINE CONTENTS. CURETTING: FRAGMENTS OF ENDOCERVICAL GLANDS WITH SQUAMOUS METAPLASIA AND ACUTE AND CHRONIC INFLAMATION AND DETACHED FRAGMENTS OF SQUAMOUS MUCOSA (SEE COMMENTS)
Comments: Endometrium is not identified in this specimen. Clinical correlation is recomended.
endo biopsy #2 after he put me on biotics for the chronic endometritis
Dense mucus containing few strips of endocervical epithelium and an eggegate of inflammatory cells. No endometrial tissue identified. Three levels are examined Gross Description: Specimen labelled “endometrial biopsy” received in formalin and consists of an aggregate of dense, mucoid material, measuring 0.7 ml. the specimen is submitted in toto.
M
y main concerns is in both of the biopsies from what I read there was no endometrial tissue. my other concern is this. read clinical diagnosis and hystory for endometrial biopsy #1. this came from the lab it says adhesiions this is what adhesions are when I looked it up online: I’m fuming right now.Intrauterine Adhesions ( Asherman’s Syndrome ) Menstrual disorders and infertility are the most common presenting symptoms in women with intrauterine adhesions ( also known as synechiae ); others include recurrent pregnancy loss and placenta accreta. Any insult severe enough to remove or destroy endometrium can cause adhesions, and the gravid uterus seems particularly susceptible to injury ( D & Cs for miscarriages, elective abortions, or postpartum curettage or caesarian sections). Less commonly, adhesions may develop as a postoperative complication of abdominal or hysteroscopic myomectomy, metroplasty or septoplasty procedures, or other uterine surgery. Chronic inflammatory or infectious insults, notably genital tuberculosis, also can result in intrauterine adhesions ( rare in the United States ). Hysteroscopy is the method of choice for treatment of intrauterine adhesions and is safer and more effective than blind curettage.
He didn’t think to mention this to me? 17 months later my uterus is filled with scar tissue and I”m told I will never concieve. This could have been caught had he told me I had adhesions/ashermans. It was the beginining stages from what I understand…I mean if my uterus was still pink/tan back in 2007. I mean who knows what “could” have happened but I wasted my time and emotions on 3 IVF’s when I probably had no endometrial lining. Even though I had great “lining” on my ultrasounds my doctor that did my hystersocopy says “you don’t know what that lining is”. During the saline u/s I measured 8.5mm lining. That was right before my hysteroscopy. Clearly that was the scar tissue they were measuring. I called the lab and I asked them who wrote that line and they said “that is what the Dr. wrote but that is not the final diagnosis. that is what he suspected when he sent in the sample”
Updates
Posted May 17, 2009
on:The American Eskimo is a charming, affectionate and loving dog. Hardy and playful, they are excellent with children. Highly intelligent and willing to please. Alert and easy to train, the American Eskimo often ranks among the top scorers in obedience trials. These dogs like to work. They are naturally wary of strangers, but once introduced, they become instant friends. Eskimos need to be part of the family, with a firm, consistent, confident pack leader. If you allow the dog to believe he is the ruler of your home, many varying degrees of behavior issues will arise. Including, but not limited to, separation anxiety, obsessive barking, dog aggressiveness, willful, and guarding. Without enough mental and physical exercise, they can become hyperactive and high strung, spinning in circles. Small dogs have a higher tenancy to become the pack leader over humans, because they are small and cute, and often times the humans are oblivious as to what has happened. Read Small Dog Syndrome to find out more.
Here are a few pictures:
9 weeks
Around 15 weeks they start losing their baby fur. It takes about 2 months to lose their fur and another 2 months for the fur to grow back. Nikko’s fur is growing in weird patches LOL. Eventually all his fluffy fur will grow back but it will take some time.
15 weeks: